Case 024 Adrenoleukodystrophy
0:49
Case 024 Adrenoleukodystrophy
781 viewsMay 26, 2019
YouTubeDr.Hisham AlKhatib
Turning grief into action: founding Will to Cure ALD #adrenoleukodystrophy #ald #nolimits #rare
1:31
Turning grief into action: founding Will to Cure ALD #adrenoleukodystrophy #ald #nolimits #rare
266 views3 months ago
YouTubeChristie & Ken ALD - No Limits
Advice for newly diagnosed ALD AMN patients #adrenoleukodystrophy #ald #adrenomyleneuropathy
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Advice for newly diagnosed ALD AMN patients #adrenoleukodystrophy #ald #adrenomyleneuropathy
465 views3 months ago
YouTubeChristie & Ken ALD - No Limits
Adrenoleukodystrophy में BMT कब कराए??#viral #bonemarrow #youtubeshorts #adrenoleukodystrophy
1:41
Adrenoleukodystrophy में BMT कब कराए??#viral #bonemarrow #youtubeshorts #adrenoleukodystrophy
4 views1 month ago
YouTubeADRENOLEUKODYSTROPHY(ALD) FAMILIE…
How my son's diagnosis led to mine.. #adrenoleukodystrophy #ald
1:26
How my son's diagnosis led to mine.. #adrenoleukodystrophy #ald
1K views4 months ago
YouTubeChristie & Ken ALD - No Limits
What I'd do with one day without ALD #adrenoleukodystrophy #ald #nolimits #rarediseases
1:33
What I'd do with one day without ALD #adrenoleukodystrophy #ald #nolimits #rarediseases
322 views3 months ago
YouTubeChristie & Ken ALD - No Limits
X-ALD का पता क्यों नहीं चलता है?#adrenoleukodystrophy #viral
0:50
X-ALD का पता क्यों नहीं चलता है?#adrenoleukodystrophy #viral
1 views2 months ago
YouTubeADRENOLEUKODYSTROPHY(ALD) FAMILIE…
1:09
adrenoleukodystrophy का दर्द क्या है??🥲 ALD की सच्चाई#viral #shorts
10 views2 months ago
YouTubeADRENOLEUKODYSTROPHY(ALD) FAMILIE…
0:28
ADRENOLEUKODYSTROPHY का new trial #ald/AMN trial #GENETIC DISORDER #ALD का नया ट्रायल
49 views3 months ago
YouTubeADRENOLEUKODYSTROPHY(ALD) FAMILIE…
1:17
I volunteer for ALD research for... #adrenoleukodystrophy #ald #nolimits #rarediseases
154 views3 months ago
YouTubeChristie & Ken ALD - No Limits
1:00
Living with Adrenoleukodystrophy: Why I Chose Stem Cell Therapy #stemcell #shorts
882 viewsMay 10, 2025
YouTubeSwiss Medica Clinic
0:41
दुर्लभ बीमारियां क्या है?#viral#adrenoleukodystrophy
32 views2 months ago
YouTubeADRENOLEUKODYSTROPHY(ALD) FAMILIE…
0:28
Duniaku sedang tidak baik2 saja, begitu cepatnya kondisi EL drop dari yang tadinya luar biasa aktif menjadi drop dengan sangat cepat karena suatu penyakit yang bahkan tidak pernah kudengar sebelumnya pernah ada di dunia ini #sonshine #adrenoleukodystrophy #ALD #XALD #leukodystrophy #leukodystrophyawareness #raredisease #miracleshappen #fyp #indonesia
2.2M viewsFeb 25, 2025
TikTokclara_inge1
3:04
Getting out of the house is a great option on days when my daughter is highly sensory seeking. Driving with the windows down, walking around, these can all help change up the day. #momtok #disability #disabled #disabilitytiktok #disabilityawareness #momsontiktok #specialneeds #parentsoftiktok #grwm #ditl #dayout #momofdisabledchildren #adrenoleukodystrophy #refsumdisease
1.7M viewsJul 11, 2024
TikTokadaptivemama
0:15
X-linked Adrenoleukodystrophy (ALD) is one of a group of genetic disorders called the leukodystrophies that cause damage to the myelin sheath, an insulating membrane that surrounds nerve cells in the brain. It leads to a long-term coma (vegetative state) about 2 years after nervous system symptoms develop. The child can live in this condition for as long as 10 years until death occurs. #genetics #neurologicaldisorder #brain #edu #edutokmotivation #edutok #neurology #disease
110.7K viewsOct 5, 2022
TikTokneurologyminute
0:32
Tidak ada orang tua di dunia ini yang mau dititipkan Tuhan anak dengan kondisi spesial tapi jika memang ini jalan Tuhan aku percaya bahwa Tuhan akan mampukan kami orangtua EL untuk merawat EL sampai titik terakhir #ceritamamael #adrenoleukodystrophy #ALD #XALD #leukodystrophy #specialneeds #raredisease #sonshine #miracleshappen #indonesia #fyp
38.5K viewsFeb 27, 2025
TikTokclara_inge1
0:12
Panduan NGT dan Alat Feeding untuk Anak
27.8K viewsMar 29, 2025
TikTokclara_inge1
0:21
Ganti selang NGT dulu, ga terasa sudah 1 bln EL pakai selang NGT, kadang sedih liatnya karna dulu EL suka bgt makan nasi dan selalu lahap kalo makan, but life must go on and i have to be strong for EL 💪 #ceritamamael #miraclebaby #adrenoleukodystrophy #ALD #XALD #leukodystrophy #raredisease #specialneeds #sonshine #indonesia #selangNGT #fyp
19.4K viewsMar 5, 2025
TikTokclara_inge1
0:33
Mav's Fight Against X-Linked Adrenoleukodystrophy
8.9K views10 months ago
TikToknikki.cald.momma
0:17
Ke RS lagi hari ini 😆 #ceritamamael #adrenoleukodystrophy #ALD #XALD #leukodystrophy #raredisease #miracleshappen #fyp #indonesia
9.4K viewsMar 12, 2025
TikTokclara_inge1
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