Seqster, a San Diego-based healthcare company aiming to build comprehensive patient records, announced Tuesday that it is partnering with the National Pancreas Foundation (NPF) to create the nation’s ...

T1D Exchange, a Boston-based nonprofit that promotes Type 1 diabetes research, has announced the launch of an open online patient data registry. By collecting information from children and adults with ...

Having a full view of a patient’s health story through real-world data (RWD) and evidence (RWE) is the key to improving health outcomes and advancing treatment options. Yet, many historical challenges ...

LONDON & CHICAGO--(BUSINESS WIRE)--Anova Enterprises, Inc. (Anova), an organization dedicated to accelerating promising treatments to market with its transformative AnovaOS™ technology platform, has ...

The Polycystic Kidney Disease Foundation and IQVIA are partners in the development of the ADPKD Registry, which is tracking longitudinal quality-of-life information from patients across North America.

PALO ALTO, Calif.--(BUSINESS WIRE)--Atropos Health, the pioneer in translating real-world clinical data into personalized real-world evidence and insights, today announced a strategic partnership with ...

The Pulmonary Fibrosis Foundation (PFF) has launched a new initiative in which they hope to capture a far more diverse representation of patients with pulmonary fibrosis (PF) than the current registry ...

March 18, 2024 – Cure Mito Foundation and Hope for PDCD foundation, both patient-led foundations focused on advancing research and supporting families affected by Leigh syndrome and Pyruvate ...

Three healthcare organizations have partnered to urge the U.S. Food and Drug Administration to develop medical device registries to help improve patient safety. The Pew Charitable Trusts, Blue Cross ...

DUBLIN, June 26, 2023 /PRNewswire/ -- Endo International plc (OTC: ENDPQ) announced today that the first patient has been enrolled in GRASP-DC (Generating Real-world Ambispective data to Study ...

The Danish National Patient Registries have emerged as an indispensable resource for epidemiological research and public health policy. These registries compile detailed, population‐wide information ...