—Children with neuromuscular diseases and cerebral palsy often report disrupted sleep, which is usually attributed to breathing disorders. But new research points to a new potential contributor: ...

A LAYTOWN family is racing against time to raise €2.7 million for life-changing treatment in the United States for their ...

BRAINERD — Motorcycle riders and enthusiasts from across the world will soon descend on Brainerd as they work to raise awareness and fight Duchenne muscular dystrophy. Hosted by Brainerd's Craig ...

Six-year-old José Capablanca was excited to see his visitors. “I think you guys want to know how fast I can run!” he shouted, racing around his family’s home in Gallatin, Tennessee. José has Duchenne ...

Please provide your email address to receive an email when new articles are posted on . At the time of last follow up, 82.6% of children born with SMA type 1 from 2016 on were still alive. Of the 140 ...

Neilah, a young internet sensation with spinal muscular atrophy (SMA), tragically passed away just a day after her 8th birthday Her mother, Ruth Wambui, gained a following by sharing their journey and ...

Gene therapies have extended survival in muscular dystrophy, requiring improved care transitions from pediatric to adult systems. Current systems lack adequate staffing, specialists, and communication ...

12-year-old Deklan Locke, who has Duchenne muscular dystrophy, uses a power wheelchair and raises awareness about the disease. Duchenne muscular dystrophy is a rare genetic disorder that causes muscle ...

• The "Fill the Boot" fundraiser ran from 3-6 p.m. and supports research, cures and local families affected by muscular dystrophy • Donations can still be made online through a QR code and dedicated ...

Taevion Norris' mother said his teachers were first to tell her that Norris was struggling in gym class. After seeing a specialist at Lurie's he was officially diagnosed. "It starts off as skeletal ...

Muscle imaging has evolved into an indispensable tool in the diagnosis and management of muscular dystrophies. Advanced magnetic resonance imaging (MRI) techniques now enable clinicians to quantify ...